WELCOME
Specialist Parkinson's Support with clinical expertise and person-centred care.
Personalised Parkinson's support, education, and guidance - led by an experienced Parkinson's Specialist Nurse.
Online consultations * Home visits (Cornwall and Devon) * Professional training.
WHY CHOOSE MY PARKINSON’S NURSE?
Trusted. Experienced. Compassionate.
My Parkinson’s Nurse was created to offer people with Parkinson’s and their families high-quality, personalised support — outside of busy NHS services - not to replace the NHS but to compliment.
When you work with me, you benefit from:
✔️ 16 years as a Parkinson’s Specialist Nurse
✔️ 32 years NHS and independent practice experience
✔️ Independent Nurse Prescriber
✔️ National leadership and teaching roles
✔️ Evidence-based, person-centred care
My approach combines clinical expertise with genuine understanding — helping you feel informed, confident, and supported at every stage.
SERVICES
Personalised Support Designed Around You
1:1 Online Consultations
Clear, practical guidance tailored to your needs.
You’ll receive:
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Explanation of symptoms and diagnosis
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General medication and symptom management information
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Lifestyle and wellbeing strategies
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Written follow-up summary and resources
Ideal for people recently diagnosed, adjusting to change, or seeking expert reassurance.
Ongoing Support & Case Management
Long-term support for complex or changing needs.
Includes:
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Regular reviews
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Care coordination
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Liaison with NHS healthcare teams and GP's
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Medication support
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Ongoing advice for families
Designed for people who want continuity and trusted professional input.
Family & Carer Support Sessions
Supporting those who support you.
These sessions provide:
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Understanding Parkinson’s progression
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Communication strategies
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Practical coping tools
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Emotional support
Helping families feel confident and prepared.
Training, Education & Speaking
Professional education for healthcare teams, organisations, and support groups.
Topics include:
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Parkinson’s management
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Young onset Parkinson’s
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Communication and wellbeing
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Service development
Available online and in person.
PREPARING FOR CQC REGISTRATION
Commitment to Safe, High-Quality Care
My Parkinson’s Nurse is currently in the process of registering with the Care Quality Commission (CQC), the independent regulator of health and care services in England.
CQC registration ensures services meet high standards of:
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Safety
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Effectiveness
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Compassion
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Governance
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Transparency
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I am fully committed to meeting and exceeding these standards, so clients can feel confident in the quality and integrity of the care they receive.
Updates on registration progress will be shared here.
Who will be your Parkinson's nurse?
My name is Emma Edwards
About My Parkinson’s Nurse
My Parkinson’s Nurse is an independent specialist nursing service providing personalised support to people living with Parkinson’s and their families.
Founded by Emma Edwards, the service combines extensive NHS experience, national leadership roles, and compassionate, person-centred care.
Emma has worked in Parkinson’s nursing for over 15 years and has a background in mental health nursing. She is passionate about improving access to specialist support and empowering people to live well with Parkinson’s.
Her work includes clinical practice, education, research involvement, and national service development.
My Parkinson’s Nurse was created to:
✔️ Provide timely, accessible specialist advice
✔️ Reduce uncertainty and anxiety
✔️ Improve quality of life
✔️ Support families and carers
✔️ Promote evidence-based self-management
Every client receives individualised care, respect, and honest professional guidance.
You don't have to navigate Parkinson's alone - compassionate, expert support is here when you need it.
Get in Touch
If you’d like to enquire about support, book a consultation, or discuss training, please contact me using the form below or via email.
All enquiries are responded to promptly and confidentially.
📧 emma@myparkinsonsnurse.com
📍 Based in Cornwall | Working UK-wide online
Services
A. Patient & Family Support
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1:1 Confidential, Online Consultations (diagnosis support, general symptom advice, treatment education, lifestyle advice).
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Family & Carer Guidance Sessions (tailored strategies to help loved ones provide effective support).
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Support Packages (e.g., check-ins and catch up's if required).
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Face to face home visits can be arranged by prior appointment (Devon and Cornwall only - mileage expenses will be added to overall cost).
B. Training & Education
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Workshops for Newly Diagnosed (step-by-step guidance for first 12 months).
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Group Education Sessions (medication, non-motor symptoms, lifestyle, coping strategies).
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Professional Training (for nurses, allied health professionals, and care staff on Parkinson’s best practices).
C. Specialist Programs
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Young Onset Parkinson’s Support (tailored to employment, family life, mental health).
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Medication Management & Prescribing Advice - this service to follow once CQC registration is agreed)
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Wellbeing & Self-Management Modules (exercise, nutrition, mental health).
Please note: if you are on my NHS caseload already, and need of a review, please phone my NHS office.
Recently diagnosed with Parkinson's consultation - £150 for 60 mins
On a secure online platform, I will guide you through all aspects of Parkinson’s, from what is happening in your brain, to the treatments and interventions available to help you manage symptoms.
During our session, we will:
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Explore the symptoms of Parkinson’s in clear, practical terms.
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Discuss self-management techniques that can support daily life.
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Highlight trusted organisations, resources, and current research opportunities.
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Welcome family members or friends who would like to join and learn with you.
After your session, you will receive:
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A summary letter capturing the key points we discussed
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A personalised information pack with printed resources to help you navigate your Parkinson’s journey
⚠️ Please note: Personalised medication advice will not be provided in the newly diagnosed chat.
Ongoing support - £125 for 60 mins.
✨ If you would like to talk again about any aspect of Parkinson’s, I’d be very happy to meet with you. We can arrange a follow-up session on a secure platform at a time that suits you.
Medication and individual care planning - pending....
✅ Once I am registered with the Care Quality Commission (CQC), I will be able to offer personalised assessments and advice regarding your treatment and medication options. I will be offering a pricing schedule soon for this as follow ups will be needed to ensure safe prescribing.
* I am registered as a non-independent prescriber, so can review, alter and prescribe Parkinson's medication.*
🤝 With your consent, I can also liaise with your NHS Parkinson’s team and GP to ensure they are kept fully updated with any recommendations we agree upon.
⚠️ Please note: Some aspects of your care cannot be managed safely online and may need to be redirected to your NHS team.
Parkinson's Training for Teams.
At My Parkinson’s Nurse, we provide high-quality training for health and social care professionals who want to build their knowledge and confidence in supporting people with Parkinson’s.
With over two decades of experience in specialist Parkinson’s care and professional education, Emma Edwards delivers engaging, evidence-based sessions tailored to your needs. Training topics can include:
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Understanding Parkinson’s: causes, symptoms, and progression
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Medication management and best practice
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Assessment and care planning
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Wellbeing, self-management, and quality of life
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Suicide awareness and prevention in the context of Parkinson’s
Flexible Delivery
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Virtual training (nationwide)
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In-person sessions (available in Cornwall and Devon)
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Bespoke programmes tailored to your organisation, care home, or school
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Prices available on request
Speaking Engagements
Emma is a sought-after speaker, having presented at conferences, webinars, and specialist forums across the UK. She is available for:
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Keynote talks
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Panel discussions
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Workshops
✨ We would be delighted to work with your organisation to raise awareness, build skills, and improve the quality of care for people living with Parkinson’s.
Gallery:
Further Information & Contact Details
If you would like to book a consultation / training session, please get in touch either by:
📧 Email: emma@myparkinsonsnurse.com or use
💬 Contact Form: Use the Contact box below
We will arrange a time and date that works best for you, along with sharing terms and conditions.
Please note: all consultations can either be paid in advance, or within 5 days of the consultation - an invoice will be sent to you
All consultation information and person related data is stored on a confidential platform called Cliniko.
This service is open to anyone that lives in the UK - international consultations will be available on request.
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