You are most welcome to the website of My Parkinson's Nurse. The UK's first (and currently only) CQC registered independent Parkinson's nurse specialist service.
In the UK, there are 166,000 people diagnosed with Parkinson's. 30,000 of those people do not have easy access to a Parkinson's specialist nurse to help them navigate and live well with the condition.
This is why My Parkinson's Nurse was created.
At My Parkinson's Nurse, you can access education on the condition, a thorough assessment on your condition, and if appropriate, an adjustment in your medication.
It's a service that is intended to compliment the NHS, not completely replace it.
I offer personalised support to help you better understand Parkinson’s, feel more in control, and make informed decisions about your care.
🎯 WHO THIS SERVICE FOR?
You may benefit if you:
-
Have confirmed diagnosis of Parkinson’s by a Specialist.
-
Over the age of 18
-
Live in the UK
-
Feel comfortable with using online platforms like Zoom or MS Teams.
-
Have questions or concerns about your condition - at any stage of Parkinson's.
-
Haven't had a review in some time.
-
Under a private or NHS Neurologist / Geriatrician .
Who this service is NOT for:
-
People diagnosed with MSA, PSP, CBD or Lewy Body dementia.
-
People on holiday from abroad and do not have a UK GP.
-
People unwilling to engage in a comprehensive, online assessment.
-
People unwilling for information to be shared with their GP and Parkinson's team.
-
People with Parkinson's who have very complex needs- this can be established on the free, introductory 15 minute phone call if you are not sure. Safe decision making is always paramount and that cannot always be done remotely.
-
People that are already on my NHS caseload in Devon - if you are in need of review, please call my office.
🔄 HOW IT WORKS
-
Get in touch by email - emma@myparkinsonsnurse.com - to arrange a short introductory phone call to see if this service is right for you.
-
If it is suitable for you, onboarding information about the service will be sent by email and agreed before we start.
-
A suitable date and time will be agreed for the consultation to take place.
-
A link to the online consultation will be sent.
-
The comprehensive, online consultation will take place.
-
An agreed plan may happen - which may, or may not involve a change in your medication.
-
My Parkinson's nurse can facilitate a private prescription with your local chemist.
-
A full written clinical letter will be sent to you, your GP, and your Parkinson's team.
-
One free follow up appointment is offered as part of the first appointment, and most certainly needed within 4 weeks if medications have been altered.
Home visits are occasionally offered in Cornwall.
CONTACT
To enquire about support, book a consultation, or discuss training, please use the contact form or email:
I aim to respond to all enquiries within 3 working days.
This is not an emergency service. Please leave your email address within any correspondence.
Based in Cornwall, working UK-wide online.
All patient and financial information is stored electronically on a secure, web based system called Cliniko. It is not linked to the NHS online systems.
Who will be your Parkinson's nurse?
My name is Emma Edwards
My Parkinson’s Nurse is an independent specialist nursing service providing personalised support to people living with Parkinson’s and their families across the UK. Founded by Emma Edwards, the service combines clinical expertise, national leadership experience, and compassionate, person-centred care.
Emma has worked in Parkinson’s nursing for over 16 years and has more than 30 years of experience across NHS and independent practice. Her background also includes mental health nursing, education, research involvement, and service development. She was recently awarded a Parkinson’s UK Excellence Network Award (2025) for her national teaching project on mental health awareness.
The service was created to improve access to specialist support, reduce uncertainty, and help people feel more informed and confident in managing Parkinson’s. Every consultation is tailored to the individual, with advice shaped around their concerns, priorities, and circumstances.
My Parkinson’s Nurse works alongside NHS care and is designed to complement, not replace, existing treatment and specialist support.
If you live in Cornwall, Emma runs a free monthly educational and support group in Bodmin at the Shire House Suite - 2nd Friday of each month 1.30pm-3.30pm.
Follow for free educational information on Parkinson's every week on the social media (X, Facebook, Instagram and Tiktok) channels below.
Services Provided
My Parkinson’s Nurse offers specialist services for people living with Parkinson’s, their families, carers, and health and social care professionals.
Initial online 1:1 clinical consultations (for people with a confirmed diagnosis of Parkinson's - 60 -90 mins - £250
A comprehensive, online assessment with an experienced Parkinson's specialist nurse for people diagnosed with Parkinson's. We will explore your motor and non-motor symptoms of Parkinson's and how these affect your life. We will explore together evidence based, non-medical and medication interventions that you might have already tried, or ones you are yet to try. This meeting may or may not result in a change to your Parkinson's medications. If a medication change is agreed, then a private prescription can be offered and arranged.
All new initial appointments will be offered 1 free follow up within 4 weeks.
Follow up appointments 30-60 mins - £150
Ongoing support of your Parkinson's condition is offered at My Parkinson's Nurse as long as it remains safe to manage from afar. It is especially important if medications / lifestyle changes have been suggested.
Family and carer online sessions - 60 mins - £150
These sessions are designed to help families and carers better understand Parkinson’s and feel more confident in supporting their loved one. This maybe a general conversation about the condition, or a structured teaching session (or a combo of both). Any specific discussion about your loved one, can only take place with their prior agreement.
Training and education - in person in Cornwall/ Devon or online - price on request.
Training is available for health and social care professionals, organisations, and support groups. Sessions can be tailored to the audience and may cover Parkinson’s awareness, medication management, non-motor symptoms, communication, wellbeing, and service development.
Speaking engagements - price on request
Emma is available for talks, workshops,
webinars, and conference sessions for professional or community audiences.
----------------------------------------------------------------------------------------------------------------------------------------------------
Frequently asked questions
Do I need a referral?
No referral is required. You can contact this service directly.
What happens in a first consultation?
The first consultation is a full comprehensive assessment of all aspects of your Parkinson's condition. A free follow up is always offered within 4 weeks.
Can family members join?
Yes. Family members or carers are welcome to join if that would be helpful.
Is the service confidential?
Yes. All consultations are handled confidentially, and information is stored securely on a system called Cliniko.
What if I need urgent help?
If you need urgent medical support, you should contact your NHS team, GP, or emergency services as appropriate. Some issues cannot be managed safely online and may need NHS follow-up. My Parkinson's Nurse will also ensure that your contact details are established beforehand, so should anything happen in an emergency during the consultation, we can contact services to help you. If you experience any side effects from recent medications changes, we will have already discussed a safety netting plan - however, please do contact My Parkinson's Nurse to organise an earlier review if needed.
Is the service available outside the UK?
The service is primarily open to people living in the UK. International consultations may be available in the future.
How do I pay for my online consultations?
An invoice will be prepared and sent to you via email from My Parkinson's Nurse prior to the consultation. The invoice should be paid online within 5 working days. Cheques cannot be accepted. Failure to pay will result in you no longer being able to access My Parkinson's Nurse services.
I have private health insurance- will you accept that?
Yes, My Parkinson's Nurse will most certainly work with private health insurance companies. Please do discuss with them prior to accessing this service to ensure they will cover it. If they do, please provide details of your plan with My Parkinson's Nurse who can then prepare an invoice for them.
Will my GP take over any changes you make to my treatment plan?
It is always suggested that you discuss working with My Parkinson's Nurse with your GP before engaging with this service. We can provide information to support this discussion. Your GP is under no obligation to provide ongoing prescriptions suggested by My Parkinson's Nurse. My Parkinson's Nurse can provide private prescriptions to ensure that any changes to medications regimes are safe and effective before your GP takes on. Sharing of clinical letters to your GP is essential so they can understand why medications may have been changed and support with potential ongoing prescribing.
Why is it important that My Parkinson's Nurse have Care Quality Commission (CQC) registration?
CQC registration is a legal requirement for anyone providing regulated health and social care activities in England. Operating without it is an offense under the Health and Social Care Act 2008. The registration proves this service satisfies fundamental standards of quality and safety. Follow up by the CQC is then completed after a period of time to assess any new services and a rating will be applied.
What if I change my mind about engaging with My Parkinson's Nurse after the first consultation, and my medication has been altered via a private prescription?
It is always recommended that any changes to a person's medication is followed up by the person that prescribed it. This ensures that any concerns can be dealt with in a timely way, but also that any responses can be updated on your NHS records. If you decide not to engage within the agreed time frame, no further prescriptions will arranged privately, and your care will be transferred back to your GP/ NHS Parkinson's team. Safety is paramount.
Where are my clinical records from My Parkinson's Nurse stored?
Any confidential information shared will be stored on a system called Cliniko. Emma Edwards is the only person with access to this. Any information shared with the person accessing the service, such as a clinical letter, can be sent via email and/or in the post. Any information sent to your GP/ Parkinson's team will be stored on their confidential systems.
How do I pay for private prescriptions?
My Parkinson's Nurse uses a secure prescribing system called SignatureRx. We pay for a token our end, which then sends a private prescription to a chemist of your choice. Your chemist will then charge you a processing fee (anything between £3-£15 - chemist dependent) and the going cost of the medication (this can fluctuate depending on UK market prices). An estimate of costs can be provided. At this moment in time, costs for private prescriptions are not incorporated in the consultation prices.
What if I'm not happy with my care from My Parkinson's Nurse?
My Parkinson's Nurse will always be clear and transparent about the care that has and can be offered. There is a clear complaints policy that will always be available for you to read if you do have any worries. Always, if you have any concerns over how you have been treated, please contact Emma Edwards via email initially so that she can listen to your concerns and rectify/ investigate any issues where appropriate. All complaints / concerns will be treated confidentially and without prejudice, and a clear written explanation will always be offered. If you feel that your complaint/ concern needs further escalation, you can contact the Independent Sector Complaints Adjudication Service. All feedback is important to My Parkinson's Nurse. This is the first service of it's kind provided in the UK, and feedback from users is vital to ensure we are meeting needs effectively and safely.
Gallery:
Further Information & Contact Details
If you would like to book a consultation / training session, please get in touch either by:
📧 Email: emma@myparkinsonsnurse.com or use
💬 Contact Form: Use the Contact box below. Please always leave your email address within the message so I can get back to you.
We can have a free 15 minute chat to see whether this service suits your needs. If it does, then we'll arrange a time and date that works best for you, along with sharing terms and conditions.
Please note: all consultations can either be paid in advance, or within 5 days of the consultation - an invoice will be sent to you.
All consultation information and person related data is stored on a confidential platform called Cliniko.
This service is open to anyone that lives in the UK - international consultations will be available on request.
Trusted Charities and organisations that can support you now.
Recommended services and brands that will support people with Parkinson's throughout the condition.
Working With the Best
